|Title / Titel||Neurodevelopmental outcome and quality of life in children after congenital diaphragmatic hernia repair|
|Abstract (PDF, 14 KB)|
|Summary / Zusammenfassung||Congenital diaphragmatic hernia (CDH) is diagnosed in 1-2 newborn per 10000/year. The Mortality today is 25-30% of all life birth with this disease. Only 60-70 % of all pregnancies where CDH is diagnosed will be carried out. With improving treatment strategies for CDH infants, an increase in survival of more severely affected patients can be expected. Thus, long-term morbidity has become an important medical issue and consequently, there is an increasing attention regarding long-term follow up of these patients. Many reports have emphasized associated morbidity, including pulmonary sequelae, neurodevelopmental deficits, gastrointestinal disorders, and other abnormalities. Therefore, survivors of CDH remain a complex patient population to care for throughout infancy and childhood. In addition, no information is available so far regarding psychological adjustment and quality of life of survivors. Information has been provided from many centers regarding individual institutional improvements in overall survival. Few of these, however, have reported long-term follow up. The aim of this study is to describe the long-term neurodevelopmental outcome and the quality of life of survivors with CDH.
Aim of the study
To assess neurodevelopmental outcome and quality of life in children after repair of a congenital diaphragmatic hernia.
|Keywords / Suchbegriffe||diaphragmatic hernia, child, neurodevelopment, quality of life|
|Project leadership and contacts /
Projektleitung und Kontakte
|Funding source(s) /
|No project-specific funding
|Duration of Project / Projektdauer||Sep 2008 to Aug 2009|